RWJF | |
Innovative
new mobile apps will provide a rich source of research data on five
diseases from those who know their conditions best: patients. The data
will be collected and aggregated on a platform developed by an RWJF
grantee, using a software framework developed by Apple. ResearchKit,
a software framework it developed that helps doctors and scientists
conduct medical research by collecting data more frequently and more
accurately from people who are using mobile apps. In addition, Apple
shared news of a suite of five free mobile apps for ResearchKit—two of
which were developed by Sage Bionetworks with RWJF support. Read More
Here's how patients will fill the health data void > |
Empower Yourself...Welcome to your future and beyond.... Working together we will build upon our "collective wisdom" to create, for tomorrow, what we can only imagine today...J. Perl, Editor
This is big (data)
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Ethics and HIT
Challenges...
http://jamia.bmj.com/site/icons/amiajnl8946.pdf
http://jamia.bmj.com/site/icons/amiajnl8946.pdf
- patient safety should trump all other values; corporate concerns about liability and intellectual property ownership may be valid but should not over-ride all other considerations;
- transparency and a commitment to patient safety should govern vendor contracts;
- institutions are duty-bound to provide ethics education to purchasers and users, and should commit publicly to standards of corporate conduct; and
- vendors, system purchasers, and users should encourage and assist in each others’ efforts to adopt best practices.