Willingness Among Patients To Share Health Data

Survey Finds Willingness Among Patients To Share Health Data
A new Pew Research Center survey finds that U.S. residents are increasingly open to sharing their health information with providers. According to the survey, about 52% of respondents say using a health information website that would give providers access to their records and simplify the appointment scheduling process would be acceptable. Health IT Interoperability et al.
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Challenges...
http://jamia.bmj.com/site/icons/amiajnl8946.pdf
  • patient safety should trump all other values; corporate concerns about liability and intellectual property ownership may be valid but should not over-ride all other considerations;
  • transparency and a commitment to patient safety should govern vendor contracts;
  • institutions are duty-bound to provide ethics education to purchasers and users, and should commit publicly to standards of corporate conduct; and
  • vendors, system purchasers, and users should encourage and assist in each others’ efforts to adopt best practices.

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